Found this helpful infographic on pinterest. I don’t know where this came from as it was pinned as a jpg so PLEASE let me know who deserves credit.
While this isn’t bona fide rote for everyone - it might help the new initiates and our loved ones understand what we’re talking about a bit when we call ourselves ‘spoonies’ and start talking about spoon theory.
Chronic Illness is like the Billy Mays of real life.
Get one disease and I’ll throw in two more FOR FREE.
96% of chronic illnesses are invisible. What percentage are you? Thank you so much for everyone who got involved, this couldn’t have happened without you.
My 96% project video is here. I’m so happy with the video, and thank you to everyone who got involved. Can you spot yourself in the video?
Help us raise awareness of invisible illnesses.
It’s Invisible Illness Awareness Week, have you seen the video?
Invisible Illness Awareness week’s over, but it doesn’t mean we don’t continue to suffer in silence
A message to fellow Spoonies as Winter settles across the land.
- Self Care is most important. If you’re flaring, rest, relax, take care of yourself.
- There is no shame in asking for help…none at all.
- Snuggle up, get as comfortable as possible for you, and ride it out, you can do it.
Winter wreaks havoc on us all, find peace in the fact that you are not alone. Remember you made it through last winter, you can do it again.
You are strong enough, you can do this, I have faith in you.
So I was having a thoughtful moment when I was trying to make myself think of my health problems from my moms pout of view cause it can’t be easy for her and then I just kinda went
She isn’t in any pain
Like at all
For the entire day
I mean unless she gets a papercut or stubs her toe she won’t hurt anywhere
And that’s just really weird to think about
Because I don’t know what it’s like to not be in pain for more than a few minutes let alone all day
“But don’t let your illness stop you!!!1!1!!”
I’m not “letting” my illness stop me it just plain IS stopping me it’s an ILLNESS it makes me ILL that’s what it DOES.
Everyone needs to read this.
Seriously. People seriously do not fucking understand the concept of “SICK AND WILL NOT GET BETTER,” or “NO, ACTUALLY, THERE’S SHIT I CAN’T FUCKING DO.”
So. I had no idea about this app until I went into my doctor and he told me about it.
LISTEN UP. THIS APP. THIS SHIT RIGHT HERE IS SERIOUSLY A BLESSING. ESPECIALLY TO ANYONE WITH FINANCIAL PROBLEMS (which is kind of everyone now). THIS IS NOT INSURANCE THOUGH. BUT IT WILL HELP YOU OUT. DOWNLOAD THIS APP RIGHT NOW. NO. STOP READING. DOWNLOAD IT.
This app allows you to input the prescription you have, select your dose, and then find a place near you (or your own pharmacy) with the cheapest price. Then you click “get code/coupon/discount card,” show that to the pharmacist, and THERE YOU GO. SAVING YOU SOME CASH TO GET YOURSELF A WELL DESERVED DRINK, CANDY BAR, DATE MONEY, SEX TOY CASH, OR GO BUY YOURSELF A HAMSTER AND NAME HIM STARLORD WITH THE EXTRA MONEY.
No, but in all seriousness. This app is saving my ass right now.
I’m Trans* and have Fibromyalgia, and this is really making a difference already. I hope this helps out other people. We all know it fucking sucks to have to pay this much for the medication we need to function in life.
This would also save lots and lots of voice calls, for people who have trouble with that. My mom was having to call around to try to compare, and also got brushed off with a lot of bad info about like you might expect. :/
I think what a lot of able bodied people forget, is that chronic means forever/persisting/all of the time.
Especially for people with chronic pain. That pain is constant. It may vary in severity, but it is always there.
We live with it, so it rarely shows on our faces. That doesn’t mean we are fine, just because we look fine in that moment.
Chronic pain is just that, chronic.
Forgot to show you guys the parking that I told the cops about a week or two ago. The other 3 spots were also taken like this by people without placards.
This is your daily PSA to not be a dick. There are only a limited amount of handicapped spaces available per building. So if you’re able bodied, please just find another spot. Cause if I see a car parked without a placard, I will call the cops on you without shame.
These people forced me to park blocks away from my class by taking ALL of the handicapped spaces in the parking lot (3 are not pictured). I was late to class and in agony because of this.
So yeah, don’t be a douchebag. Just take the time to find another space. And I sure fucking hope they enjoyed their parking tickets.